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Helpful Resources

In the early years of diagnosis of Prader-Willi Syndrome, which occured in the 1950's, very little was known about its causes, or treatment.  Much has been learned in the last fifty years.  Now, infants can be receive a confirmed diagnosis within days of birth due to the higher chromosomal analysis that is available today. As a result,  intervention and specialized care for the child and informational and educational training for the parent/caregiver can be implemented early in the child's life resulting in a much greater likelihood of reducing the impact of some of the common traits /behaviors triggered by PWS.  One of the prime resources for information is to contact our national parent organization http://www.pwsausa.org/.

It is our intention to provide a list of Oklahoma physicians and other professionals who can be contacted by parents or other inquirers for additional information or services.
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