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Chapter Activities


 20th Annual State Meeting/Conference


Oklahoma City Zoo Education Auditorium
2000 Remington Place
Oklahoma City, OK 73111

 Saturday, September 26, 2015  -  9:00 a.m. to 3:00 p.m. 

Special Guest Speakers 

John W. Cassidy, MD - Dr. Cassidy is a neurologist and psychiatrist.  He is the Founder, CEO, and Chief Medical Officer of HealthBridge Children's Hospital in Houston, Texas.  Prior thereto, Dr. Cassidy was the Psychiatrist in Charge and Co-Founder of the Neuropsychiatry Program at McLean Hospital; Chief Medical Officer and Founder of the Neurobehavioral Institute of Houston; Director and Founder of the Neuropsychiatry Subspecialty Services of Del Oro Rehabilitation Hospital; and Medical Director of Neurobehavioral Programs at Cypress Creek Hospital.

Dr. Cassidy received his Bachelor of the Arts from Hiram College and Doctor of Medicine from the University Of Cincinnati College Of Medicine.  In addition, he received his post-graduate training at Harvard Medical School and is certified by the American Board of Psychiatry and Neurology.           

Ken Smith – Mr. Smith is the Executive Director of the National Prader-Willi Syndrome Association. Mr. Smith and Dr. Cassidy worked to establish the in-patient Prader-Willi Program at HealthBridge Children's Hospital in Houston, Texas for Prader-Willi individuals who are in crisis with behavior or weight issues.   Ken is well-known and well-respected in the PWS community. He has dedicated his professional life to support and service of individuals with Prader-Willi syndrome, beginning with his employment with The Children’s Institute in Pittsburgh in 1985 where he served as assistant program coordinator of the PWS Program for 27 years.

He was nominated for the Board of Directors of PWSA (USA) and attended his first board meeting at the Seattle national conference in 1995. This was the first of many since he has served on the board for 18 years, except for stepping off for two one-year terms as required by the PWSA (USA) bylaws after three three-year terms. He has served as board chair or board co-chair, been a member of the crisis team, and is active with the PWS Advisory Board.

   Deadline to register for the conference is Friday, September 18, 2015!

Deadline to register for box lunches is Tuesday, September 15, 2015!

The cost of the conference is $10 per person and includes a box lunch.

To register for the conference, please complete the enclosed registration form and return via the instructions at the bottom of the form. Late registrants may register and pay at the door; however, box lunches cannot be guaranteed for late registrants.  NOTICE: a.m. and p.m. snacks will be provided for all PW individuals and siblings participating in the activities.

If you are a member of our Oklahoma chapter or want to become a member, the membership dues of $15 per family are also due at conference time.


 Your PWSA of Oklahoma Chapter is pleased to provide financial backing for the Oklahoma City Zoo activities for
our PW individuals, our conference speakers, and all additional conference expenses.


Our state chapter was formed by a small group of concerned parents wanting to meet together, discuss issues about raising our respective child with Prader-Willi Syndrome, and seek more information about the disorder and give and receive encouragement.  We began with a family picnic in Tulsa in 1995.  As a result of that gathering, our state chapter was formed.  We have met yearly as a chapter and have conducted a family oriented conference for parents and professionals for educational and mutual support purposes.  Many of the best known national speakers knowledgeable about the syndrome have come to our yearly conference and helped provide a great amount of information and assistance to parents and even professional caregivers and providers.  The past few years our conference has been held in the fall (September) in the Oklahoma City area.  We have had numerous parents come from Texas, Arkansas, and Kansas to attend our conference making us an educational source to the region.  These conferences are designed for parents, professionals AND our special children who also enjoy meeting again their old friends from past years.  Activities are designed for them with volunteer caregivers to relieve the parents of oversight so they can give themselves to participating in the conference.  Most of the work in putting together our annual conference is done by a handful of parents.  We welcome assistance from those who would be willing to share this responsibility and helping make the event better each year.


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